This is a letter from Amber and Dale, about the loss of their baby girl Ava at just 12 days old.
Ava died from a condition called schizencephaly – a condition so little is known about that Ava’s doctors could only provide an A4 sheet of information.
Our scientist want to find out more about this condition, but we need your help.
Please make a tax-deductable donation by clicking here. Every little bit helps.
Download a PDF of Ava’s story